St. Louis Woman with Peritoneal Mesothelioma Reacts to Her Mesothelioma Diagnosis
What to do when you think you have peritoneal mesothelioma
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Description:
When Brenda learned she had peritoneal mesothelioma, a rare asbestos cancer that attacks the lining of the abdomen, she was devastated. In this video she describes her reaction to being diagnosed with mesothelioma.
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Topic:
Coping with Mesothelioma , Peritoneal Mesothelioma
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peritoneal mesothelioma , coping with mesothelioma , mesothelioma diagnosis , depression
Length:
1:48
Views:
26
Video Transcript: St. Louis Woman with Peritoneal Mesothelioma Reacts to Her Mesothelioma Diagnosis
My first reaction to my diagnosis was devastation. It just kind of takes your breath away. You don’t know what to say.
You can’t even pronounce the word, so you are asking questions on, "What is this disease? What does this mean? What does the word 'terminal' mean to my life? Does it mean I’m dying now or does is mean I’m dying… when? When? What? What am I supposed to do next?"
Recover from the biopsy, and you try to pull your life back together and go back to work and wait for the results. Because they told me that it would be about six weeks.
So I couldn’t sit at home and feel depressed and feel like the world was going to pull the plug, and I’m going down the drain. I didn’t want to feel like that, so I went back to work and said, "It’s going to have to catch me."
Well, after I was sitting there waiting and thinking, I said, "I am going to have to get a little bit more detailed information on this and find out where I am and what this disease is because the doctors are saying words and terms and things that I am not familiar with. So, I am going to have to do it myself. Because I can’t wait for them." So I got online when I would come home from work. I would research, and I would read, and I would call the numbers, the 800 numbers, and ask questions and say, "I am totally stupid; I don’t know anything about it... I can’t even pronounce the word. So please help me! Help me figure out what I am going to do and how I should proceed forward."
Six weeks.... they always say it is harder to wait than it is to sit there and get hit in the head with it.... at least you know what you got hit in the head with, but when you have to wait six weeks to figure out what you have been hit with, then that is hard.
But when you have to wait six week to find out what you got hit with, then that is hard. But when it came back, we just have to deal with it. But at least I was a little more informed... wasn’t so scared.
